Doing my Remicade.

I can't believe it has been 8 wks already since my last treatment. That went by so fast. 

Well here I sit at Portsmouth Hospital, getting my transfusion of Remicade. My gastro doc says since I am having no symptoms, we will continue to do the infusions. But there really isn't any way of knowing if it is helping or not, because crohn's can be symptom free on its own. Oh well I don't really care whether it is the meds or not, I am just so happy to have not been admitted to the hospital in the last 7 months- since my surgery on Christmas Eve. 

I really need  to think about and remember daily how happy I am to be well. It really sucked being in the hospital so many times last year. Tubes down into my stomach, NO FOOD for days, ( i think that was the worst!) lying in a hospital bed for days, was NOT FUN. So here I sit feeling just great, I will say I am so grateful. I may have to sit here with an iv for several hours but at least I am feeling fine. 

And did you know how much this damn medicine costs? Well, it is expensive. Very expensive. Thank god, and Gary, for us having insurance. I come to the hospital and get an iv, which takes about 3 hrs to slowly drip into me, and that's it. That little bag of medicine costs , are you ready? The bill for each time I come is $19,400. yes that is nineteen thousand dollars. Are you f!@%#* kidding me?? That's what I said when I found out. What is this stuff? Liquid gold? 

I never knew there was a medicine that costs so much. But the nurses here say there are plenty of meds that cost as much and more! Doesn't seem right. Oh well. My medical costs this past year have been - out of control. 

I didn't have time to eat dinner before coming today, so I had to order a sandwich. Last time I ate here it was not very good. But today the turkey sandwich was really pretty good. 

Well, tomorrow I head up to meet Gary at Range Pond Campground, up by Gray, Maine.  Gary went up today with Ashley and Zach. Everyone else will be going up tomorrow. It is Christmas in July. Last year we went there with Sharon, Gene and Jessica. And Bailey. The activities for the kids were awesome. Santa came on a sleigh, with really nice toys for all and the kids make a craft and also decorated Christmas cookies. 

I love camping. It is so calming. I need calming. 

I love my husband. He is also very calming. 

I love my son. Sometimes not so calming. But I read somewhere that the reason god turns our children into teenagers is because if they stay the way the are we would never want them to leave home and be out on their own. It makes sense. I would never want that sweet little boy of mine to ever leave home if he hadn't turned into a teenager. 

 He has a wonderful heart. I will miss him so much when he goes to California. He is so handsome.

 How did I get these wonderful men in my life? I never ever imagined my life would be blessed with such wonderful loving men. I never new men like this existed. Kind, loving and 

Oh beep beep beep. the IV is done. Got to sign off now.

Another BAT!!!

Gary got home after midnight last night. Did his usual "wind down" watching tv, snacking and playing on the computer. But last night he had a little visitor! Just like me- he was sitting on the couch and the litter bugger flew by. Gary grabbed the broom to "bat" him with, and then opened the front door, same front door I let last's night little guy go out of, and the little guy flew out!  

Wonder if it was the same bat. We checked the fireplace- no sign of any daylight up there. Checked windows and in the basement for anywhere they may have access to the inside. Oh I hope I don't get any visitors tonight. I may have to lock myself in the bedroom so if one does get in, he won't get me. I probably won't be able to sleep if the bedroom door is left open. 

I don't like bats flying around the living room. 

Clouds all day. Rain most of the day. Muggy around 66 degrees. 

My boy leaves for school in Calif. in 23 days. 

Freakin' Bat

Freakin' Bat!

Just sitting here on the couch surfing the web, minding my own business, and WHAT was that?! A Freaking Bat goes flying by. Broad daylight! I thought those little suckers only came out at night! 

Oh course I know, they don't land in your hair, but my first instinct is to scream, cover my head with a pillow and run. I called my husband and he laughed a little and said he would head home to rescue me.

I didn't ask him to come home- he just offered! I hung up the phone and stood watching the little guy fly around the living room. But he wasn't as little as I would think he was pretty big. And not too cute either. He flew by the ceiling fan with ease a few times.

I noticed my cat Niki staring up at the top of a floor lamp . Then I thought, that is kind of silly, to have Gary leave work, drive home and rescue me - especially since I didn't even try to get the little bugger out on my own. So.........................I decided I would give it a try. 

First I put all the shades in the room up. I had left the windows and shades closed today because it was so humid. Maybe that's why he came out during the day- it was pretty dark even though it was only about 4:30pm. He thought it was nighttime! Actually I am glad- can you imagine if it happened in the "dark of night?" oh I think I would have freaked out a little more.

Anyway, then I quietly walked over to the door, opened it slowly and propped the screen door open. Next I slowly went to the lamp, only about 3 feet away from the door, and carefully started tilting the lamp top in the direction of the opened door. All I could think was "if he comes out at me I am going to freak". 

Slowly, carefully, and YIPPy! He was free! He flew out the door and around the front yard for a few seconds then off to a nearby tree.

After I had decided to try to get the bat out by myself, he was out within 2 minutes!!! Yay!

I called Gary immediately and told him I was SAFE NOW and he didn't need to come home. He laughed.

I did it. whew. Gary is going to have to try and figure out how he got in. Maybe the fireplace.