Well here I sit at Portsmouth Hospital, getting my transfusion of Remicade. My gastro doc says since I am having no symptoms, we will continue to do the infusions. But there really isn't any way of knowing if it is helping or not, because crohn's can be symptom free on its own. Oh well I don't really care whether it is the meds or not, I am just so happy to have not been admitted to the hospital in the last 7 months- since my surgery on Christmas Eve.
I really need to think about and remember daily how happy I am to be well. It really sucked being in the hospital so many times last year. Tubes down into my stomach, NO FOOD for days, ( i think that was the worst!) lying in a hospital bed for days, was NOT FUN. So here I sit feeling just great, I will say I am so grateful. I may have to sit here with an iv for several hours but at least I am feeling fine.
And did you know how much this damn medicine costs? Well, it is expensive. Very expensive. Thank god, and Gary, for us having insurance. I come to the hospital and get an iv, which takes about 3 hrs to slowly drip into me, and that's it. That little bag of medicine costs , are you ready? The bill for each time I come is $19,400. yes that is nineteen thousand dollars. Are you f!@%#* kidding me?? That's what I said when I found out. What is this stuff? Liquid gold?
I never knew there was a medicine that costs so much. But the nurses here say there are plenty of meds that cost as much and more! Doesn't seem right. Oh well. My medical costs this past year have been - out of control.
I didn't have time to eat dinner before coming today, so I had to order a sandwich. Last time I ate here it was not very good. But today the turkey sandwich was really pretty good.
Well, tomorrow I head up to meet Gary at Range Pond Campground, up by Gray, Maine. Gary went up today with Ashley and Zach. Everyone else will be going up tomorrow. It is Christmas in July. Last year we went there with Sharon, Gene and Jessica. And Bailey. The activities for the kids were awesome. Santa came on a sleigh, with really nice toys for all and the kids make a craft and also decorated Christmas cookies.
I love camping. It is so calming. I need calming.
I love my husband. He is also very calming.
I love my son. Sometimes not so calming. But I read somewhere that the reason god turns our children into teenagers is because if they stay the way the are we would never want them to leave home and be out on their own. It makes sense. I would never want that sweet little boy of mine to ever leave home if he hadn't turned into a teenager.
He has a wonderful heart. I will miss him so much when he goes to California. He is so handsome.
How did I get these wonderful men in my life? I never ever imagined my life would be blessed with such wonderful loving men. I never new men like this existed. Kind, loving and
Oh beep beep beep. the IV is done. Got to sign off now.
No comments:
Post a Comment